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The following excerpt is from Willowgreen Publishing’s
book When You’re the Caregiver:
12 Things to Do If Someone You Care For Is Ill or Incapacitated
by James E. Miller.
Treat the other as the equal he or she
is.
The unfortunate truth is this:
the other’s injury or illness or disability may become
such a focus it almost replaces the rest of their identity.
This process, initiated by family and friends as well as by
professionals and strangers, is often unintentional and unconscious.
But it is not unimportant. It is a destructive act.
The tendency to diminish and
dehumanize the other occurs in various ways. You may make
decisions for them without bothering to consult them. Or you
may treat them as helpless by doing things they are capable
of doing on their own, things they even wish to do. You may
use infantile language, as in, “What are we going to
wear today, dear?” You may find yourself feeling pity
rather than empathy.
Never forget: the person you’re
caring for is just as unique and just as complex as before.
They are just as sacred as ever. And that person deserves
to be respected and treated as such. Ask yourself: if you
do not treat them as a valued equal, who will?
Some ways you can be conscious
of relating to the other as an equal include:
- Expect the other to maintain as much control over their
life as they wish and as they are able. Support them in
this.
- Validate what you esteem in the other by what you say
and do. Make sure the other knows what you respect about
them.
- If the other has changed a great deal as a result of
this experience, look beneath the surface and treasure their
heart and soul.
- Be accepting of the other’s place on their journey,
even if it’s not where you believe you would be. For
starters, you can’t know for sure how you would respond
in the same situation. In addition, it’s not your
role to change the other person. Only they can do that.
Relating to the other as your
equal is healthy, but it is not always easy to do. The other
may not agree with you—and has that right. The other
may get angry—and has that freedom. The other may test
you and try to alienate you, to see how committed you are
to staying with them. The other may take out their frustrations
on you, when they’re really upset about something else.
You may be a “safe target,” or the only target
available to them.
When you have times of strain,
here are some ways to handle it:
- Honestly look to see if you have been treating the other
as less than equal, even in small ways. If you have, admit
it. Then strive to change.
- Visualize yourself in the other’s situation. Ask
yourself what you might feel, how you might behave, what
you might be tempted to do.
- Listen as non-defensively as you can to any words of anger.
If the feelings directed your way are justified, talk them
through. Be genuine. If the feelings are really directed
elsewhere but they happen to land on you, try not to take
them personally. Be understanding.
- Take a break if you feel hurt or impatient or critical.
Find ways to unwind.
Remind yourself what you already
know: strong relationships can withstand difficult times.
In fact, successfully navigating such times can make your
relationships even stronger.
Jim Miller offers many
more suggestions for caring for someone who’s ill or
incapacitated in his book
When You’re the Caregiver: 12 Things
to Do If Someone You Care For Is Ill or Incapacitated.
This is another innovative double book by Willowgreen Publishing.
The other half of this book in entitled When You’re
Ill or Incapacitated: 12 Things to Remember in Times of Sickness,
Injury, or Disability. Jim has created various
other print and audiovisual resources both for caregivers
and for those in their care. Jim’s interest in these
topics is both professional and personal, having been a caregiver
for a family member with a serious illness.
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